My name is Jennifer and I am the Mommy of Jacob Christopher who is 3.5 years old. Why am I telling you about a 3.5 year old? Because he has SMA type I, the most severe form of Muscular Dystrophy and he has outlived his prognosis of 1 year by almost 3!!!! We think alot of this is because we have used breastmilk with him since he was born. I pumped for him until he was 2.5 since he lost his ability to suck at 3 months. At 2 we went to a breastmilk bank to supplement and eventually take over when I stopped producing and used them for a while, but then learned they were falsifying wht they were billing for and insurance cut us off and made them pay back everything they had charged. So, for the past 9 months I have had a wonderful mother in Durham whom I met off MilkShare who has been donating to us. She has just stopped making milk and we are in search of a new generous mother to help us out.
A little history, Spinal Muscular Atrophy causes children to lose all voluntary muscle use. In Jake's case, he cannot sit, crawl, or walk. He cannot talk, eat or swallow. He eats everything by g-tube and we have to watch every bit of protein and fat he consumes because he lacks the musculature to process and use proteins and an overlaod can prove toxic in his little body. Therefore, we use breastmilk. The medium chain protein and fats are perfect for his digestive system and his body to process. He has done so well, he has never lost weight and is still on the doctor's growth charts for both weight and height.
Now that I have given you a science lesson...LOL! I hope you will look at Jake's website to learn more about him and SMA and that you will consider donating to us. I could come pick up this weekend if you are willing. My personal email is email@example.com
- Posts : 17
Join date : 2010-02-06
I am a coffee drinker, 2-3 cups every morning usually after i pump. I do eat dairy occasionally in the way of cheese mostly. I'm a non smoker, non drinker and take no meds. I'm healthy and so are my babies.. knock on wood but it the time of sicknesses the healthiest people in the house have been me, and the baby and my 3 year old... i attribute the kids' welness to my breastmilk.
My bags are stored in 6 ounce quantities right now but if I had a donor that would need smaller amounts at a time i'd be willing to freeze less per bag.
- Posts : 3
Join date : 2010-03-12
Location : NC