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Log inSMA baby NEEDS breast milk!!!
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SMA baby NEEDS breast milk!!!
by jaeliesmiracle Tue Mar 02, 2010 1:15 pm
Hi!
My name is Melissa and my daughters name is Jaelie. She is 15 months old and was born with a genetic disease called Spinal Muscular Atrophy Type 1. SMA affects muscles used for sitting, crawling, and walking. Jaelie has never even been able to hold her own head up. SMA also affects more important muscles used for swallowing and breathing! For this reason Jaelie has a G-Tube surgically placed for her to be able to eat SAFELY! I have been talking to other moms in the SMA community and most have found great success with breast milk in regards to making our kids stronger! Breast milk has actually been found to have Stem Cells in it! Stem Cell treatments are very expensive and currentyl only available overseas for SMA. I really hope SOMEONE can find it in their heart to donate their precious gift to my Jaelie so that she can live a longer, healthier life. Our family greatly appreciates ANY and ALL help! We live in Florida but I just received an overnight shipment of breast milk stored in a cooler with 5 pounds of dry ice and the milk did NOT thaw AT ALL! What a blessing! There is NO CURE for SMA so any little bit HELPS!
Stay BLESSED,
Melissa & Jaelie
meljae0409@gmail.com
My name is Melissa and my daughters name is Jaelie. She is 15 months old and was born with a genetic disease called Spinal Muscular Atrophy Type 1. SMA affects muscles used for sitting, crawling, and walking. Jaelie has never even been able to hold her own head up. SMA also affects more important muscles used for swallowing and breathing! For this reason Jaelie has a G-Tube surgically placed for her to be able to eat SAFELY! I have been talking to other moms in the SMA community and most have found great success with breast milk in regards to making our kids stronger! Breast milk has actually been found to have Stem Cells in it! Stem Cell treatments are very expensive and currentyl only available overseas for SMA. I really hope SOMEONE can find it in their heart to donate their precious gift to my Jaelie so that she can live a longer, healthier life. Our family greatly appreciates ANY and ALL help! We live in Florida but I just received an overnight shipment of breast milk stored in a cooler with 5 pounds of dry ice and the milk did NOT thaw AT ALL! What a blessing! There is NO CURE for SMA so any little bit HELPS!
Stay BLESSED,
Melissa & Jaelie
meljae0409@gmail.com
jaeliesmiracle- Posts : 64
Join date : 2010-02-17
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