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Desperately need a donor on Long Island

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We are in need of a new donor hopefully on Long Island

Post by Sophiasdad on Tue Sep 28, 2010 3:57 pm

HI all, my donor is dwindling and I am in need of a new supply for Sophia. If you can help please contact me. Thank you so much.

Sophiasdad

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Join date : 2010-01-26

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We are in need of a new donor

Post by Sophiasdad on Sun Jun 06, 2010 8:50 pm

Sorry we haven't been on for awhile we are losing our donor. If anyone has any extra milk please send me a message. Sorry for all who I had not responded to. We have been very busy with Sophia these last couple of months which included a trip to see the sma specialist in wisconsin. 1k miles each way. Thanks for all your help.

Sophiasdad

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Re: Desperately need a donor on Long Island

Post by lavenda319 on Thu Apr 22, 2010 6:48 am

I have plenty of frozen milk to share. I live in long island. I am willing to have blood work done. Contact me if you're still interested!

lavenda319

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Breast Milk to Donate in Nassau County

Post by dianap626 on Mon Apr 19, 2010 2:30 pm

Hello,
I have fresh frozen breast milk that I would love to share with anyone that needs it. Please contact me.

dianap626

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I would love to donate to your precious Sophia!

Post by dianap626 on Mon Apr 19, 2010 12:51 pm

HI,

I live in Mineola, I have a lot of milk frozen that is less than 1 month in storage. I nursed my daughter Sofia but I stopped nursing because she has some allergies. I would love to donate to you! I can get any testing or proof of health that you need. Please let me know.

Diana

dianap626

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do you still need milk?

Post by supersolstice5 on Fri Apr 16, 2010 1:05 pm

i live in queens/ work at LIJ hospital. I have lots of milk to donate, if you still need it. let me know and we can discuss details.

supersolstice5

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donation on Long Island

Post by robyn615 on Mon Apr 05, 2010 10:20 am

Where on Long Island are you? I live in Mount Sinai and have approximately 200 oz to donate. I am willing to go for blood work.

robyn615

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Join date : 2010-04-05

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Hi JMP

Post by Sophiasdad on Sun Apr 04, 2010 6:55 pm

Yes we are looking for BM still on Long Island.

Sophiasdad

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Re: Desperately need a donor on Long Island

Post by JMP on Tue Mar 30, 2010 10:32 am

Are you still looking for a donor on Long Island?

JMP

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Desperately need a donor on Long Island

Post by Sophiasdad on Fri Jan 29, 2010 6:55 pm

Hi Everyone,
My daughter Sophia has a terminal ill ness called Spinal Muscular Atrophy type 1. It is a genetic neurological degenerative disease. Life expectancy is 50 percent die in the first 6 months and the rest generally do not live past 2 years of age. My daughters web site is www.sophiascure.com and our cause on facebook is also Sophias Cure. Because of the extremely low muscle tone of these children they cannot tolerate many foods and can actually get amino acid poisoning from typical formula. Sophia is going to be a year old Feb 27 and there are other type 1's who are still alive. Almost all of the older kids who are beating the odds are on BM. My wifes supply is dwindling rapidly and we would love to find a donor as it is essential to her survival. Sophia has a feeding tube because she has lost the ability to swallow. She is on a breathing machine and we use machines to cough her to clear her airways. Sophia is completely paralyzed with only a slight movement in her fingers. We are hoping to keep her alive in time for a cure which seems so close. Although Sophia is living with this horrific disease she still smiles and knows she is truly loved. If you have not decided yet we would love to be considered for your milk. We have to especially careful with a donor for Sophia as she is extremely sensitive. I would want to have blood work .Thanks so much Vincent

Sophiasdad

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Re: Desperately need a donor on Long Island

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