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In Need of Milk for a Brave little Boy Fighting a Terminal Illness

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Re: In Need of Milk for a Brave little Boy Fighting a Terminal Illness

Post by bensgypsymama on Tue Sep 21, 2010 3:12 pm

were you still in need of BM for your little boy? i am in charleston and my hubby does travel through sc to nc and ga on a fairly regular basis. you can see my post for more info if youd like.

bensgypsymama

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Join date : 2010-09-21

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In Need of Milk for a Brave little Boy Fighting a Terminal Illness

Post by Jake'sMommy on Mon Jul 05, 2010 7:47 pm

My name is Jennifer and I am proud to be the Mommy of Jacob, a 4 year old little boy who is battling Spinal Muscular Atrophy Type I. SMA type I is very similar to ALS except it hits hard at a very young age. Jake is unable to sit, stand, talk, or eat. Everything we feed him is monitored strickyl by me, MOM, and a dietician. I have to research and try and fail with baby foods, supplements, and fats/proteins. Jake eats ONLY through a g-tube and has strick guidelines. He has been breast fed since birth, I pumped until he was 2.5 years old, and when my BM dried up he began receiving donor milk. We are trying to transistion him from BM, but currently he will only tolerate 3 mL of safflower oil for his fat and 2 tsp of a protein supplement for his protein. In order to completely transition from BM, he will need to tolerate 2 tablespoons of oil and 3 TBsp of supplement...we are a long way off from that! I will say that BM has been a mainstay, over 40% of his calories, and what is keeping him healthy and growing. My son was only suppose to live months. Thanks to the grace of God, he just celebrated his 4th birthday last month and is still growing and glowing! If you live in NC, SC, VA, GA, or TN and would be willing to donate to my son, we would be greatly appreciative! As I said above, he is the world to me. I have driven a 10 hour round-tripper before to get him BM. Your generosity would mean the world to my son.
Please check out Jake's websites, www.our-sma-angels.com/fortheloveofjake or www.carepages.com/fortheloveofjake
Thank you and God Bless,
Jennifer

Jake'sMommy

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