MilkShare
Thank you for requesting to join MilkShare! We are happy to have you. Inappropriate requests are not tolerated and forums are carefully moderated. Please read our guidelines for safer sharing at www.milkshare.com. If you are seeking milk, we request that you please help to keep MilkShare alive by contributing $20 via Paypal to yaaykhadi@gmail.com prior to posting. Thousands of families have used MilkShare to donate or receive milk for their babies. We believe that this community is preserving an age old practice and giving more babies the best nutrition possible. Thank you for contributing to our success!

Brave Little Boy Battling a Terminal Disease in NEED of Your Gift

View previous topic View next topic Go down

Brave Little Boy Battling a Terminal Disease in NEED of Your Gift

Post by Jake'sMommy on Wed Apr 20, 2011 7:18 pm

My name is Jennifer and I am proud to be the Mommy of Jacob, a 4 year old, about to be 5!!!!, little boy who is battling Spinal Muscular Atrophy Type I. SMA type I is very similar to ALS except it hits hard at a very young age. Jake is unable to sit, stand, talk, or eat. Everything we feed him is monitored strickly by me, MOM, and a dietician. I have to research and try and fail with baby foods, supplements, and fats/proteins. Jake eats ONLY through a g-tube and has strick guidelines. He has been breastmilk fed since birth, I pumped until he was 2.5 years old, and when my BM dried up he began receiving donor milk. We are trying to transistion him from BM, but currently he will only tolerate 3 mL of safflower oil for his fat and 1 TBsp of a protein supplement for his protein. In order to completely transition from BM, he will need to tolerate 2 tablespoons of oil and 3 TBsp of supplement...we are a long way off from that! I will say that BM has been a mainstay, over 40% of his calories, and what is keeping him healthy and growing. My son was only suppose to live months. Thanks to the grace of God, he will celebrate his 5th birthday in June and is still growing and glowing!
We had an awesome donor in Virginia who has kept us in business for the past year, but her baby has turned a year old and her milk has slowed down. If you live in NC, SC, VA, GA, or TN and would be willing to donate to my son, we would be greatly appreciative! As I said above, he is the world to me. I have driven a 10 hour round-tripper before to get him BM. Your generosity would mean the world to my son.
Please check out Jake's websites, www.our-sma-angels.com/fortheloveofjake or www.carepages.com/fortheloveofjake. Your generous donation would mean the difference in life.

Jake'sMommy

Posts : 17
Join date : 2010-02-06

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum