Breastmilk for g-tube fed daughter
Re: Breastmilk for g-tube fed daughter
Our daughter, Emily, is 4.5 yrs old and has a severe neuromuscular disease called Spinal Muscular Atrophy (SMA) -- b/c of SMA Emily has lost her ability to swallow and is completely fed via gtube. You can read about her at www.hopeforemily.com -- We supplement her complicated dietary "cocktail" with Breast Milk b/c of the essential nutrients that her body is better able to metabolize. Diets are super hard for kids with SMA, and we have been quite pleased with her tolerance of illnesses b/c of her strengthened immune system after adding breast milk to her diet.
We had a friend who was donating before they moved away, and then found an incredible local donor (.5 mile away!) who has recently cut back on pumping and can no longer donate. We have a couple of months left, tops. We're hoping to not have to cut BM out of her diet since she has done so incredibly well on it.
We are hoping to find someone that is willing to get some blood work done and we are perfectly willing to pay for any copays. We are able to pick up and store BM and we'll do whatever we can to make it easier on a donor -- like providing storage bags and such. If this sounds like something you'd like to do I cannot tell you how appreciative we'd be!!
Re: Breastmilk for g-tube fed daughter
firefightermom- Posts : 2
Join date : 2010-02-04
Breastmilk for g-tube fed daughter
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